Sickle Cell News for June 2015

June 19 – World Sickle Cell Day - World Sickle Cell Day 2015: How Rare Disease Awareness Leads To Quality Care, Treatment http://www.medicaldaily.com/world-sickle-cell-day-2015-how-rare-disease-awareness-leads-quality-care-treatment-338846 http://www.huffingtonpost.com/edda-collins-coleman/world-sickle-cell-day-why_b_7617714.html New Book for Patients and Family Members - Breaking Silence: Living With Sickle Cell Anemia  by James Griffin III James Griffin III was diagnosed at the age of two with Sickle Cell Disease. Since then he has been determined to make a difference in his life and others by raising awareness about sickle cell anemia. This book reveals many aspects that patients face daily and is current and referenced. http://www.amazon.com/Breaking-Silence-Living-Sickle-Anemia/dp/1500858005/ref=sr_1_3?ie=UTF8&qid=1435685668&sr=8-3&keywords=living+with+sickle+cell New Web Resource - Super Moms with Sickle Cell and we're here to spread awareness in our own unique way and to help mothers.. Mothers with sickle cell go through so much more than a typical carrier. www.SuperMomswithSickleCell.com and email supermomswithsicklecell@yahoo.com FDA- Sickle Cell and Clinical Trials Page - http://www.fda.gov/ForConsumers/ByAudience/MinorityHealth/ucm451865.htm Video Resource –June 24 – 25, 2015  NHLBI Sickle Cell Disease Forum Engaging the Community: Developing Solutions (Day 1 and Day 2) http://videocast.nih.gov/summary.asp?Live=16351&bhcp=1 http://videocast.nih.gov/Summary.asp?File=19087&bhcp=1 High School Scholarship - Inspiring More Minds, Inc. presents the $500.00 2015 Paradise ScholarshipThis scholarship has been created to financially assist an eligible High School senior pursuing college or any other continued educational program. The Paradise Scholarship has been named in memory of Paradise Vaughn, a vibrant individual who passed away at the age of 19 due to complications from Sickle Cell Disease. Eligibility to apply       -Current High School Senior   - Have Sickle Cell Disease - Acceptance into a program of higher educationTwo scholarship recipients will be selected. Application deadline is July 5, 2015For Application go to www.InspiringMoreMinds.com( click on the FORMS tab ) Track  the new bill in Congress - H.R. 1807 Sickle Cell Disease Research, Surveillance, Prevention, and Treatment Act of 2015 at https://popvox.com/bills/us/114/hr1807 or https://www.govtrack.us/congress/bills/114/hr1807